Contact Person:
Mrs. Neli Dirimanova – President
Mobile phone number:
0898586258
E-mail:
neli_dirimanova@abv.bg
Description:
The support group for porphyria is an informal non-profit, non-party, voluntary, independent association of people suffering from various types of porphyria and their families.
A specialized porphyrias unit is operating in Bulgaria, combining diagnosis, treatment and long-term monitoring of porphyrias patients. It was initiated in the 60’s of the previous century by Prof. Emil Ivanov. Since 1994, the unit has been working on a functional basis in the Gastroenterology Clinic at University Hospital “St. Ivan Rilski” in Sofia.
Useful Materials (only in Bulgarian):
Порфирии – заглавие
Порфирии – указания за лекари
Порфирии – указания за пациенти
Програма за развитие на звеното по порфирии към Клиника по гастроентерология, УМБАЛ „ Св.Иван Рилски”
Контакти на звеното по порфирии
All the materials are courtesy of the Porphyrias Unit at the Gastroenterolgy Clinic of the “St. Ivan Rilski” University Hospital, Sofia, Bulgaria!
Contacts for further information:
Assoc. Prof. Aneta Ivanova, MD, PhD
Mrs. Doroteya Leonkeva
Mrs. Ivayla Simeonova
“St. Ivan Rilski” University Hospital
Gastroenterology Clinic
Porphyrias Unit
15 Ivan E. Geshov Blvd
1431 Sofia, BULGARIA
phone/fax: (+359) 2 852 69 30
e-mail: sv.ivan_rilski_lvh@abv.bg
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Last modification: 14:16 07.06.2010
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