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Description:
EUROPLAN National Conference for Rare Diseases took place on 28-30 May 2010 in Plovdiv and received huge interest from medical professionals and patients (300 participants), official guests from EURORDIS and leading foreign experts on rare diseases were also present. The event was jointly organized by ICRDOD and NAPRD. During the conference the Bulgarian National Plan for Rare Diseases (2009-2013) and EUROPLAN recommendations for effective rare diseases strategies were officially presented to the Bulgarian rare diseases stakeholders. The results from the first Bulgarian epidemiological registry for rare diseases, the one of patients with thalassemia, were also made public during the event.