EURO-WABB Project

EURO-WABB is a newly launched project that will create a rare diseases registry for Wolfram, Alstrom and Bardet Biedl syndromes. Funded by DG Sanco for 36 months, the project is based in the UK. Its vision is to make the EU health service a more supportive environment for rare diabetes syndrome patients, to reduce morbidity and premature mortality and to improve quality of life. The general objective of this project is to support efficient diagnosis, treatment and research for the overlapping rare genetic diseases Wolfram, Alstrom and Bardet Biedl syndromes and other rarer syndromes in Europe. It will be achieved by implementing an EU registry for Rare Diabetes, containing clinical, genetic diagnostic and outcome data. For more information, please visit EURO-WABB website.