Contact person:
Monika Milkova Marinova
Mobile phone:
0885 44 00 19
Postal Address:
2 Sredna Gora Str.,
6008 Stara Zagora
Email:
marinova_tarlov@abv.bg
Facebook group – closed (intended for patients) “Tarlov Perineural Cysts Group Bulgaria ”- the membership is approved after an MRI is presented.
Facebook page of the association – Association of Tarlov Patients in Bulgaria – Treatment without
borders
Governing body:
Monika Milkova Marinova – president
Zhenya Angelova Stoencheva – member
Rositsa Mincheva Mincheva-Naneva – member
Aims of the association:
Protecting the rights of people with rare diseases, including those suffering from Perineural Tarlov Cysts;
Supporting, pooling, promoting and informing people with Perineural Tarlov Cysts and their adaptation to society;
Supporting the professional development and qualification of researchers and physicians in the field related to the prevention, diagnosis, treatment and rehabilitation of Tarlov’s perineural cysts;
Introducing the society to the features of the disease, the prevention, diagnosis, treatment and rehabilitation of Perineural Tarlov Cysts, with the physiological and the psychological consequences of it;
Promotion, support and development of research for Tarlov’s perineural cysts abroad;
Establishing contacts with similar organizations abroad;
Making contacts and dialogue between the association and the bodies and organizations in regional and global level, related to rare diseases, including Tarlov’s perineural cysts;
Taking measures to overcome the emotional consequences of the illness;
Vocational retraining and social rehabilitation of people with rare diseases, including those suffering from Perineural Tarlov Cysts;
Providing funds for the treatment and support of patients with perineural Tarlov cysts.