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Interesting report from EPPOSI

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An interesting report from the Sixth Workshop on Partnering for Rare Disease Therapy Development „People with Rare Diseases – No Longer Alone in the World“ (London, 25-27 October 2005) is published on their website. The workshop brought together representatives of the patients` organizations, academic science and industry. The main conclusion is that the partnership building is a key element in developing solutions to address the specific issues in researching, developing and manufacturing treatments, and in ensuring that the rare disease patients get access to those treatments. To access the full text of the report, please click here.

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