National program for rare diseases

On 9th of February 2006 the ICRDOD deposited at the Bulgarian Ministry of Health a proposal for establishment of a National Program for Rare Diseases and Orphan Drugs in Bulgaria. The proposal is stressing on the importance to place in the full glare of publicity the problems of the patients with rare diseases, as well as theirs doctors. The initiative is supported by leading European organizations like RDTF and ORPHANET, EURORDIS, CNMR, as well as key opinion leaders from Bulgaria like Prof. J. Jorgova, Chairman of the Bulgarian Society of Cardiology, Prof. Dr. P. Stamenova, Chairman of the Bulgarian Society of Neurology, and Prof. P. Tivchev, President of Bulgarian Orthopedic-Traumatology Society. We will keep you informed with the progression of this initiative.