A global grassroots campaign led by persons living with a rare disease and their families has succeeded in securing the adoption of the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”
BRUSSELS, Belgium and NEW YORK, Dec. 16, 2021 (GLOBE NEWSWIRE) — Rare Diseases International (RDI), the NGO Committee for Rare Diseases, and EURORDIS-Rare Diseases Europe announced today that the UN General Assembly formally adopted a resolution recognising the over 300 million Persons Living with a Rare Disease (PLWRD) worldwide and their families.
The Resolution focuses on the importance of non-discrimination and advances key pillars of the UN Sustainable Development Goals (SDGs), including access to education and decent work, reducing poverty, tackling gender inequality, and supporting participation in society.
Adopted by consensus by the 193 UN Member States. More information here.