“Rare Diseases & Orphan Drugs” – issue 8

The new edtion of “Rare Diseases & Orphan Drugs” is just in front of you. This issue covers Rare Disease Day 2012. You can read our discussion with rare diseases patients on topics like soridarity and how to make the society more aware of rare diseases problems. We also present you the scheduled Rare Disease Day 2012 events in Bulgaria and how to join them. Further, you will find updated information for BURQOL-RD study, as well as some recent European developments on rare diseases registries. Rare Diseases Library features the rare disorder blepharospasm. If you enjoy “Rare Diseases & Orphan Drugs”, do not forget to subscribe through the form in the right.