Osteogenesis imperfecta (OI), sometimes known as brittle bone disease or Lobstein syndrome is a genetic bone disorder. Aiming to improve awareness and professional qualification of medical professionals, Assoc. Prof. Dr. Violeta Yotova and her team from the Children’s Endocrinology Clinic (University Hospital “St. Marina”, Varna) are organising an international OI workshops for young pediatric endocrinologists from Bulgaria, Turkey, Serbia, Romania and Poland. The event will take place on 28 April 2012 at Romance Hotel at St. Constantine and Helena Resort. OI leading specialist from UK, Belgium, Poland and Bulgaria will be present their experience and expertise. A special gust would be Ms. Ute Wallentin from OI Federation Europe.
Bulgarian OI patients and their families are also invited to attend the meeting. It would be an opportunity for them to get in touch with the recent development in OI topics, as well as to establish an OI patient association, representing them before the Bulgarian institutions. “St. Constantine and Helena” Foundation will provide a free of charge accommodation of patients and their families during the event. Patients are kindly asked to confirm their participation in advance by e-mail to nahrb.varna@abv.bg or by phone to +359 (0)889 324 216.
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