15th National Conference on Rare Diseases and Orphan Drugs
September 13-14, 2024
Hotel “Imperial”, Plovdiv
The Fifteenth National Conference on Rare Diseases and Orphan Drugs, under the patronage of the Health Committee of the 50th National Assembly, the Ministry of Health, and the National Health Insurance Fund, will take place in Plovdiv, one of the oldest cities not only in Bulgaria but also in Europe. Over 230 participants, including medical professionals, representatives of patient organizations, health authorities, and industry experts, will gather to share experiences and learn about the latest developments in the diagnosis, treatment, and monitoring of rare diseases.
The Institute for Rare Diseases, in partnership with the Association of Medical Students – Plovdiv, and the National Alliance of People with Rare Diseases, will host the event. The conference will be held on September 13-14, 2024, at Hotel Imperial in Plovdiv. The opening ceremony will take place on Friday, September 13, at 12:00 PM in the Ballroom (9th floor of Hotel Imperial Plovdiv).
In the past decade, rare diseases have become a priority area for public health in the European Union. Due to their rarity, they are often difficult to diagnose and treat, which highlights the importance of multidisciplinary care and collaboration between specialists.
The main topics of this year’s event will include:
- 6 scientific sessions in neurology, pediatrics, dermatology, endocrinology, neonatal screening, and the diagnosis of rare diseases in nephrology.
- 8 sponsored sessions.
- Our annual training “Academy for Rare Diseases.”
- A session of scientific reports featuring 63 active scientific presentations.
The Institute for Rare Diseases is the first interdisciplinary and multifunctional organization for rare diseases in Eastern Europe. With its professionally structured four departments: the Information Center for Rare Diseases and Orphan Drugs, the Medical Center “RareDis”, the Center for Health Technology Assessment and Analysis, and RareDis Solutions, the Institute offers holistic solutions covering all aspects of rare diseases and orphan drugs. Every day, the team strives to achieve its main goal – to accelerate access to innovative therapeutic solutions and improve care and quality of life for patients with rare diseases.
This year, we are excited to celebrate the 20th anniversary of the Information Center for Rare Diseases and Orphan Drugs (ICRD). Established in 2004 as the first of its kind in Eastern Europe, the center has provided valuable information to patients, organizations, and medical professionals with an interest in rare diseases and orphan drugs. Over the years, ICRD has developed with the support of volunteer consultants—leading medical specialists from university clinics in Bulgaria.
On September 13, 2024, at 10:00 AM in the “Panorama” Hall of Hotel Imperial, Plovdiv, a special edition entitled “15th National Conference on Rare Diseases and Orphan Drugs – September 13-14, 2024, Plovdiv” will be released—a postage stamp in a block and a special postal cancellation. The stamp will be validated by Vachka Ivanova, Director of the Southern Central Region of “Bulgarian Posts.”
Details of the edition:
- Type: a postage stamp in a block
- Stamp size: 25×50 mm
- Perforation: frame-like
- Printing technique: digital print
- Paper: white
- Nominal value: 3.30 BGN
- Print run: 5,100 copies
- Artist: Petar Chuchuligov
We look forward to welcoming you to the opening on Friday, September 13, at 12:00 PM, and the release of the special edition on September 13, 2024, at 10:00 AM in the Panorama Hall (9th floor of Hotel Imperial Plovdiv).