First Eurasian Conference on Rare Diseases and Orphan Products

The First Eurasian Conference on Rare Diseases and Orphan Products together with the Third All-Russian Conference for Rare Diseases and Rarely Used Medical Technologies “Lifeline” will take place on 21-23 June 2012 in Moscow, Russia. This pilot Eurasian rare diseases platform is a joint initiative of the Russian national association of patients with rare diseases “Genetics”, the Russian federal scientific and clinical center of pediatric hematology, oncology and immunology “Dmitriy Rogachev”, the Eurasian Alliance of rare disease, the Bulgarian association for promotion of education and science and the Italian national centre for rare diseases. The event will focus on global rare diseases policy trends, such as rare diseases registries, standards of treatment and rehabilitation of rare diseases, and palliative care for patients with rare diseases. For further information and registration, please, visit the conference official website.