The European Commission has launched an advanced IT platform to facilitate cross-border medical discussions on rare diseases. Known as the Clinical Patient Management System 2.0 (CPMS 2.0), this platform will enhance the work of the European Reference Networks (ERNs) in diagnosing and treating rare or low-prevalence complex diseases across EU Member States. Funded by the EU4Health programme, CPMS 2.0 replaces the original CPMS, which has been in use since 2017.
The platform introduces a new era of collaborative medical consultations. With a patient-focused design, it enables seamless remote multidisciplinary discussions like never before. Fully compliant with the General Data Protection Regulation (GDPR), CPMS 2.0 ensures a secure environment for clinicians from across Member States to work together on challenging rare disease cases.
Significantly, the platform’s code will be released as open source, setting a precedent for developing similar national systems. These systems could extend beyond rare diseases, fostering remote collaboration among healthcare professionals and reducing the need for patient travel. For the first time in the EU, healthcare providers will have access to a free, robust foundation for building advanced IT platforms at the national level.
The European Reference Networks (ERNs) bring together centres of expertise across the EU and Norway to address rare, low-prevalence, and complex health conditions requiring specialised care. Currently, one-third of the 24 ERNs have transitioned to CPMS 2.0, with the rest expected to follow in the coming weeks.
By introducing CPMS 2.0, the Commission is reinforcing its commitment to advancing patient-centric, innovative, and collaborative healthcare across Europe. Learn more here.