“Rare Diseases & Orphan Drugs” – issue 12

Issue 12 of “Rare Diseases & Orphan Drugs” is already published on our website. The main topic of this edition is the outcome of the last month’s National Conference for Rare Diseases. You can check the feedback from Elena Eneva (DEBRA Bulgaria), Assoc. Prof. Margarita Genova (National Hematology Hospital/ Bulgarian Hematology Society) and Nadezhda Tsekulova (Bulgarian National Radio). In the editorial we would remind you about the requirements of the Cross-Border Healthcare Directive, as well as the so-called “Elchinov” case. Furthermore, you can get informed about osteogenesis imperfecta, access to orphan drugs in Bulgaria and health technology assessment. Have a nice reading!