Save butterfly children!

DEBRA Bulgaria and the Bulgarian Helsinki Committee are launching a “Save the butterfly children!” campaign. It advocates for the inclusion of epidermolysis bullosa in the list of disorders whose home treatment is covered by NHIF. People with this rare disease have extremely fragile and delicate skin. The usual daily activities lead to blisters and sores such as from severe burns. Pain can be reduced if special non-adhesive bandages and antibiotic creams are used. However, their monthly cost is unaffordable for the Bulgarian patients.
Support the fair demands of patients with epidermolysis bullosa by signing their online petition and sending a postcard to the health authorities. More information can be found on the campaign website.