National Alliance of People with Rare Diseases – 2

The 1st National Conference of Patients with Rare Diseases will take place on 14 April 2007 from 10:30 am, in the “Oborishte” conference hall of hotel “Light” (37 Vesletc str., Sofia). The purpose of this event is to establish a National Alliance of People with Rare Diseases. The programme includes presentations of patient associations, discussions, voting the statute of the Alliance and press conference in the “Veslets” hall of the same hotel.