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“St. John” and “St. Ivan Rilski” Lions Clubs are organising a charity ball on December 13 at “Sheraton” Hotel in Sofia to help children suffering from epidermolysis bullosa. The “butterfly” kids need special non-adhesive bandages, that are not accessible. Epidermolysis bullosa bandages are not reimbursed, despite the disorder being chronic and lifelong. Families usually can not afford such expense and therefore children suffer more.
Lions Club International is one of the largest charities in the world, founded nearly 100 years ago. Their motto is “We Serve”. If you wish to attend and support the initiative, please contact Lions Club by e-mail lk.st.joan @ gmail.com.