Rare Disease Day in Sofia

Rare Disease Day would be marked on February 28 for a sixth time. The motto of the initiative this year is “Rare Diseases without Borders”. In Bulgaria, the organizers from the National Alliance of People with Rare Diseases will draw the public attention on the problems of rare diseases patients and on improving health care for rare diseases. A series of events will be take place in Sofia. On February 28 patients with rare diseases will fly balloons in front of the Presidency Office. An official press conference will be later held at the Ministry of Health. On March 9 a seminar on rare diseases for GPs will be organized at the Alexandrovska University Hospital. The Second Balkan Conference of Patients with Rare Diseases, titled “Communication and support to patients, based on modern technologies” will be take place on March 29 to 31 March. For more information, please visit the official website of NAPRD.