3rd Rare Diseases Summer School for Health Authorities and Legislators

The Rare Diseases Summer School for Health Authorities and Legislators is taking place for a third year in a row. This year’s event would be held from May 1-8 2013 in Turkey and is organized by BAPES, the Russian National Rare Diseases Patient Association “Genetics” and the Italian National Centre for Rare Diseases. School faculty includes renowned rare diseases experts from the UK, Russia, Italy, Spain and Bulgaria that will present important rare diseases topics as national plans, epidemiological registries and health technology assessment. Read more about the Rare Diseases Summer School in the upcoming issues of “Rare Diseases and Orphan Drugs” newsletter.