Rare Diseases Best Practices

Project Duration: 01 January 2013 – 31 December 2016
Overal Project Budget: € 2 293 654,86
EU Contribution: € 2 000 000
Website: RARE-Best practices
General Objectives: 

• collection, evaluation and dissemination of existing best practices;
• an agreed methodology suitable to develop and update best practice guidelines;
• training activities targeted at key stakeholders to spread expertise and knowledge;
• a forum for exchanging information, sharing lessons learnt, and facilitating collaborations.

Project Coordinator: ISTITUTO SUPERIORE DI SANITA