Better care for people with rare diseases

The Bulgarian National Alliance of People with Rare Diseases (NAPRD) is launching a campaign to raise funds to provide better care for patients with rare diseases. The initiative aims to ensure funds for teams of psychologist, nutritionist and physical therapist in major cities. Such kind of comprehensive care for people with rare diseases has been already available in the Children’s clinic of the University Hospital “St. Marina” in Varna. Thanks to donations, a psychologist is working free of charge with individual patients and support groups. 15 000 BGN are needed to continue this successful initiative. More information on how to contribute to this charity campaign can be found on the website of NAPRD. Information for Sofia, Plovdiv, Pleven and Stara Zagora will be announced later.