Osteogenesis imperfecta is a congenital hereditary disease characterized by bone fragility. The clinical picture varies from very mild to lethal forms occurring in the perinatal period. Osteogenesis imperfecta – Bulgaria (www.oife.org) organises a meeting of patients with this disease. It will be held on 18 March 2014 at 14 pm at University Hospital “St. Marina” in Varna. All patients with this syndrome are invited to attend the event. At this meeting people with osteogenesis imperfecta would be able to learn about new developments in therapy and will have the opportunity to share the problems they face in everyday life.
If you are a patient and you want to attend the meeting, please contact Ms Zdravka Grancharska (0879174379, mama_3022@abv.bg).
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