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The 9th ICORD conference “Societal value of Prevention, Diagnosis and Treatments of Rare Diseases” will be held on 7-8 October 2014 in Ede, The Netherlands. The event will be organized in parallel to the Dutch Medicine Days, with both joint sessions and separate ICORD sessions and open workgroup meetings. The 9th of October the programme is dedicated to ICORD only, where a wide range of topics concerning medical, research, political, social, industrial, and economical aspects will be presented. For more information, visit the official website of ICORD, please.