3rd International Workshop “Rare disease and orphan drug registries”

The third International Workshop “Rare disease and orphan drug registries” will be hold from 24th to 25th November, 2014 in Rome, Italy. The event is organized within the EPIRARE project. Among the main topics are: the contribution of  registration activities to recent advancements in the medical history, epidemiology and pathogenesis of rare diseases as well as patient care and quality of life; practical and innovative applications of registries; lessons learned in the management of rare diseases registries; the impact of e-health initiatives, new communication technologies and social networks. The deadline for the submission of abstracst is 12th October 2014. For more information, please visit the official EPIRARE website.