Campaign for European Year for Rare Diseases 2019

In 2019 will be celebrated the 20 year anniversary of the adoption of the EU Regulation on Orphan Medicinal Products  and the 10 year anniversary of the Commission Communication and Council Recommendation on rare diseases. It would be a very important year for the society of rare diseases patients and everyone, involved in this mission. The European Year will send a strong public and political message on behalf of the 30 million Europeans who suffer from a rare disease and will raise awareness and encourage researchers to focus on these rare, mostly unknown, seriously debilitating and often life-threatening diseases. For more information, please visit the website of EURORDIS.