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Eurasian Alliance Rare Diseases is organizing an international patient meeting for sharing experience on 13-14 December 2014 in Sofia. It will be attended by patient representatives from Belgium, Bosnia and Herzegovina, Bulgaria, Georgia, Greece, China, Macedonia, Poland, Russia, Serbia and few European Associations for various diseases. The event is dedicated to exchanging experience about availability of treatment, prevention, rehabilitation and social adaptation. You can read the preliminary program of the meeting here.