National Registry of Patients with Myelofibrosis

The National registry of patients with myelofibrosis in Bulgaria is a joint project of BAPES and the Bulgarian Scientific Society of Clinical and Transfusional Hematology. Collection of primary epidemiological data for the project’s first implementation phase was completed in October 2013. Questionnaires were completed by medical professionals from the university hospitals’ hematology clinics in the country. Diagnoses of primary and secondary myelofibrosis, in accordance with the current international standards in clinical hematology, were the inclusion criteria for registering. The initial investigation registered 129 people. 114 (88.37%) of them were diagnosed with primary myelofibrosis, 15 (11.63%) with secondary myelofibrosis. Male were 62.79% (81 patients), female were 37.21% (48 patients). Non-standardised annual prevalence was 2.04 per 100 000 people. The mean age of the registered patients was 65.88 ± 9.67 SD years. Minimum registered age was 32 years, maximum age was 89 years. The most frequent age was 66 years.