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On 9th of September 2008 Mr. Evgeniy Zhelev, Minister of Health, has approved the National Programme for Rare Diseases – genetic disorders, congenital malformations and nonhereditary diseases (2009-2013). The news is published on web-site of the press-centre of the Ministry (click here). The programme consists of 9 priorities which include prevention and early diagnosis of pregnant women and all newborns. The next step is the official decision by the Council of Ministers. You can follow the chronology of the events leading to this result here(2008), here(2007), here(2007), here(2006), here(2006), here(2004) and here(2004).