4th International Summer School on Rare Disease & Workshop

On 26-30 September 2016 – Rome, Italy, will be held  two important events: 4th International Summer School on Rare Disease and Orphan Drug Registries (26-28.09) and ​RD-Connect BYOD Workshop to Link Rare Disease Registries (29-30.09). Both events are open to health professionals, researchers, medical specialists, medical students, registries curators, database managers and representatives of patient associations, who are involved in or intend to establish a rare disease patient registry.

All information will be available soon here.