CEEGN Meeting

On 24 – 25 January 2009 representatives of parent and patient organisations for genetic and rare diseases from 11 Central and Eastern European countries (Poland, Bulgaria, Czech Republic, Turkey, Croatia, Slovenia, Bosnia, Romania, Russia, Slovakia, Estonia), assembled in Prague
to discuss the common problems and needs of people with genetic and rare conditions in this region, as well as to establish the plan and programs needed to address those needs. They have founded the Central and Eastern European Genetic Network (CEEGN) with aim to raise
awareness and promote the need for early diagnosis and treatment of genetic diseases, medical genetic services, research and development for the causes and cures of these diseases, education of public, patients and science, in CEE countries in order to alleviate the burden of genetic conditions for individuals, families and communities, with the ultimate goal to improve the quality of life of patients and their families in those countries. To read the declaration adopted at the meeting, please click here.