Letter of support from Bulgaria’s First Lady – Mrs. Zorka Parvanova

Mrs. Zorka Parvanova, Bulgaria’s First Lady and Official Patron of all Rare Diseases Day 2009 events in Bulgaria, expressed her full support and compassion to all rare diseases patients and their families. Mrs. Parvanova thanked the National Alliance of People with Rare Diseases and the Information Centre for Rare Diseases and Orphan Drugs for their activities, one of the results of which is the adoption of the National Programme for Rare Diseases 2009-2013. To read the letter, please click here.