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On 21-22 March 2017 will be organized Rare Diseases Registries Workshop in Madrid, Spain. This event is supported by the Consumer, Health, Agriculture and Food Executive Agency (CHAFEA) for the dissemination of the 2nd Health Programme results and organized by the Centre for Biomedical Network Research on Rare Diseases (CIBERER), depending on the Instituto de Salud Carlos III. The workshop will bring together all the key stakeholders in the development of rare disease registries allowing them to share the results from several EU Health Programme projects and Joint Actions funded between 2008-2015. For more information please follow the site of the workshop.