Rare respiratory diseases: from Rare Disease Day to the European Reference Networks

The journal European Respiratory Journal has published an article about rare diseases. Rare diseases are life-threatening or chronically debilitating conditions which are of such low prevalence (fewer than 1 in 2000 people) that special combined efforts are needed to address them. The ERN-LUNG is a network of European healthcare providers dedicated to ensuring and promoting excellence in care and research for the benefit of patients affected by rare respiratory diseases. ERN-LUNG’s vision is to be a European knowledge hub for such diseases and to decrease morbidity and mortality from them in people of all ages. The full-text article you can find here.