Meeting of the expert group “Social Policy and Public Health” to the CPD

On 5 August 2009 an extended meeting of the expert group “Social Policy and Public Health” to the Commission for protection against discrimination was held. It was indicated that there is some progress regarding the establishment of a register of patients with rare diseases under the National programme for rare diseases. Overall, however, it is vitiated by the cumbersome procedures for the launching and conduct of tenders for the supply of medicines under the Law on Government Procurement. In accordance with its powers of prevention, protection and control the Commission for protection against discrimination will make recommendations for legislative changes to the institutions that will lead to improvement of the situation and timely treatment of patients with rare diseases.