The National Alliance of People with Rare Diseases and patient associations in Bulgaria will be once more actively involved in this year’s events on the occasion of the Rare Disease Day. On 25 February, a press conference will take place at the BTA with the participation of patient representatives. On 28 February, a charity concert will be held in Plovdiv under the patronage of Bulgaria’s First Lady – Mrs. Zorka Parvanova. The event will start from 16 o’clock at the National Army Hall. Special guests include Nikolina Chakardakova and the Nevrokop Dance Ensemble, Orhan Murad, “Detska Kitka” Children Choir, “Era” Ballet. On 28 February, stands in major cities (Sofia, Plovdiv, Varna, Pleven) will be organized, where patients and volunteers will distribute rare diseases information leaflets.
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