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A seminar for patients with primary pulmonary hypertension will be held on 29 May 2010 as a parallel workshop of the First National Conference for Rare Diseases and Orphan Drugs. Guest speaker will be Dr. Tsvetomira Chorbadzhiyska, a specialist in cardiology. The meeting aims to exchange experience and information between the participants how they deal with their problems in terms of economic crisis and to discuss proposals for actions on funding for treatment and support for patients with primary pulmonary hypertension. For more information, please contact the National association „Primary pulmonary hypertension“.