Living with a rare disorder

The journal Molecular Genetics & Genomic Medicine has published an article about patients living with a rare disorder. Individuals with rare diseases may face challenges that are different from those experienced in more common medical conditions. A wide range of different rare conditions has resulted in a myriad of studies investigating the specificities of the diagnosis in focus. The shared psychological experiences of individuals with a rare condition, however, have not been reviewed systematically. The full-text article you can find here.