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BURLQOL-RD Project, funded by the EC, officially started on 20 April 2010. Its main outcome will be an integrated and harmonized set of instruments to assess and monitor socio-economic burden and health-related quality of life (HRQOL) of patients affected by rare diseases and their caregivers in EU. The Information Centre for Rare Diseases and Orphan Drugs through BAPES is an associated partner in this project. For further information – click here or visit the project official website.