Bridging the gap between health and social care for rare diseases

The journal Advances in Experimental Medicine and Biology has published an article about bridging the gap between health and social care for rare diseases. Bridging the gaps between health and social care for rare diseases is not only necessary but crucial to increase the life expectancy, quality of life and autonomy of people living with a rare disease, supporting them in the full realisation of their fundamental human rights.The complexity of rare diseases, their strong relation to disability and the current unmet social and daily life needs of people living with a rare disease must not be underestimated and require urgent attention from all stakeholders involved in care provision, from healthcare to social and community services. The full-text article you can find here.