March “For a fair chance to our children” – Open letter

On the occasion of the March “For a fair chance to our children”, patient organizations from the National alliance of people with rare diseases have sent a letter to the Bulgarian Prime Minister – Mr. Boyko Borisov. Patients have requested a meeting with him in order to present the problems of people with rare diseases and their families and to look together for ways to solve them. “We are aware that the economic crisis requires saving and budget cuts, but life is equally dear and valuable to anyone” write people with rare diseases to Mr. Borisov. The full text of the letter in Bulgarian can be found here.