ICRDOD announces the publication of the next of its reviews, now on the actual situation and tendencies in the rare diseases field in Bulgaria. It contains 5 main chapters: methodology and governance of the Bulgarian National plan for rare diseases (2009 – 2013); definition, codification and inventorying of rare diseases; research on rare diseases; centres of expertise, reference networks and access to orphan drugs; patient empowerment. Our analysis is based on three main documents – EU Council recommendation on action in the field of rare diseases, EUROPLAN recommendations and the Bulgarian National plan for rare diseases. The comments and suggestions, which came from the participants of the EUROPLAN Bulgarian National Conference for Rare Diseases, have been had in mind when completing the explored indicators. You can read the review at the Registries & Statistics section.
353