Biliary Atresia Registry

PubMed, the Internet portal of biomedical and life sciences literature, indexed an article, entitled “Biliary atresia research is crossing national and interdisciplinary borderlines by the European Biliary Atresia Registry (EBAR) (Acta Paediatr. 2005 May;94(5):526-7). Authors are Petersen C, Melter M, Leonhardt J at al., from the Department of Paediatric Surgery, Medical School Hannover, Hannover, Germany. The European Biliary Atresia Registry (EBAR) was founded in 2001 in order to raise awareness of the rare disease biliary atresia and to reinforce international and interdisciplinary cooperation. The number of participating centres and registered patients increases continuously. A first evaluation of the EBAR data is scheduled for 2006, when the registry will alter its infrastructure. This meeting will be organized together with the European Federation for Biliary Atresia Research (EFBAR), a scientific committee, which was founded in 2003. The objectives of this association are to create clinical and basic research studies, which are based on existing registries in Europe. EBAR activities can be found at their website www.biliary-atresia.com. To access the abstract of the article, click here.