On 15 May 2009, Medical Centre “RareDis” officially started work. It’s a logical extension of the ICRDOD activities, because after having received information about their disease, people need continuous medical cares and follow up. A main accent in the new centre’s activities is the team work in assuring physical, psychological and social rehabilitation, as well as training parents in providing qualified and adequate daily health care of their children with rare diseases. This centre would be of substantial national and regional importance, an innovative model for all European countries. Medical Centre “RareDis” co-operates closely with ICRDOD, scientific societies and patient associations in a number of joint projects.
Contacts:
Help Line: (+359-32) 57 74 47
E-mail: medical@raredis.org
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Last modification: 13:19 04.12.2009
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