First Workshop in Bulgaria on
«HEREDITARY ANGIOEDEMA – DIAGNOSTICS, THERAPY AND EPIDEMIOLOGY»
Date:
11 March 2005 (Friday) at 13:00 – 16:00 h
Venue:
hall Puldin, hotel “Trimontium-Princess”, Plovdiv, Bulgaria
Organizer for Bulgaria:
Information Centre for Rare Diseases and Orphan Drugs (ICRDOD)
Sponsors:
Rotary club – Plovdiv, Bulgaria
Foundation for the Prevention and Treatment of Fatal
Angioedematous Disease, Hungary
Participation fee:
For patients and doctors – FREE after preliminary registration
For pharmaceutical companies and representatives – send a mail to bapes@mail.bg
Program:
– 13:00-13:10
Assoc. Prof. Margarita Stefanova, MD, PhD – Medical University of Plovdiv, Bulgaria
Opening of the workshop
– 13:10-13:30
Dr. Henriette Farkas, MD, PhD – Department of Internal Medicine, Semmelweis University, Budapest, Hungary
Clinics, diagnosis and therapy of the hereditary angioedema
– 13:30-13:50
Assoc. Prof. Margarita Stefanova, MD, PhD – Medical University of Plovdiv, Bulgaria
Epidemiology and genealogical investigations of the hereditary angioedema in Bulgaria
– 13:50-14:20
Dr. Maria Staevska, MD – Medical University of Sofia, Bulgaria
From the first patient to molecular studies: 32 years of HAE research in Bulgaria
b]- 14:20-14:50
Dr. Lilian Varga, PhD – Complement Laboratory, Semmelweis University, Budapest, Hungary
Centre for Hereditary Angioedema
– 14:50-15:20
Dr. Rumen Stefanov, MD, PhD – Information Centre for Rare Diseases and Orphan Drugs
Necessity for increasing the knowledge of medial professionals about rare diseases and orphan drugs
– 15:20-16:00
Discussion