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Dr Edmund Jessop is the recipient of the EURORDIS Policy Maker Award in recognition of his outstanding work and support of the rare disease community through his dedication to patient advocacy and tackling rare diseases as a public health issue as public health lead of the National Commissioning Group and author of the reform on highly specialised care in the UK @NHSEngland
Register to attend the Black Pearl Awards Ceremony on 12 February in Brussels: https://blackpearl.