Project Duration – 01.04.2008 –
01.04.2011 (36 months)
10 Partners
Istituto Superiore di Sanità (ISS). National Centre for Rare Diseases (CNMR)
The Netherlands Organisation for Health Research and Development (ZonMw)
Instituto de Salud Carlos III (ISCIII)
Karolinska Institute (KI)
London strategic health authority
University of Tartu (UT)
European Organisation for Rare Diseases (EURORDIS)
Bulgarian Association for Promotion of Education and Science (BAPES)
Fundacion Canaria de Investigacion y Salud (FUNCIS)
Mario Negri Institute for Pharmacological Research (IRFMN)
39 Collaborating Partners from EU, USA, Canada, Turkey and Croatia
Total Budget: 1 090 883 euros
EAHC Co-Funding: 642 150 euros
Project Coordinator: Prof. Domenica Taruscio, Istituto Superiore di Sanità, Italy
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