Dates: 11/09/2011 - 18/09/2011 | Add to Google Calendar
The first ever in Eastern Europe Rare Diseases Summer School was held from 11 to 18 September in Sunny Beach (Bulgaria). 18 Russian policy and decision makers had the possibility to get closer to rare diseases topics and to understand the significant added value that rare diseases actions and measures possess. The participants came from a wide range of public fields – federal legislative bodies and health authorities, their equivalents from the regions, leading medical institutions, academics, patient organizations and pharmaceutical industry.
Website: http://raredis.org/pub/Newsletter/Rare_Diseases_Summer_School_2011.pdf