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Patient Organizations

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You can find in this section information about the rare diseases patients’ organization in Bulgaria, as well as the National Alliance of People with Rare Diseases (NAPRD). You could read a brief description and useful contact details of them.

· Association Cystic Fibrosis

· Association of Acromegaly Patients in Bulgaria

· Association of Hereditary Angioedema Patients

· Association of Lymphoma Patients

· Association Retina Bulgaria

· Bulgarian Association for Neuromuscular Diseases

· Bulgarian Association for Hemophilia

· Bulgarian Association Prader-Willi Syndrome

· Bulgarian Association Wilson’s Disease

· Bulgarian Crohn Disease and Ulcerative Colitis Association

· DEBRA Bulgaria

· Epidermolysis Bullosa Association (ABE)

· Cornelia de Lange Syndrome Association

· National Mucopolysaccharidosis Association

· National Association of Gaucher Disease

· National Association of Patients with Growth Hormone Deficiency

· National Association of Patients with Mitochondrial Diseases, Bulgaria

· National Association of People Suffering from Chronic Myelogenous Leukemia

· National Syringomyelia Association

· Organisation of Thalassaemia Patients in Bulgaria

· Pituitary Association

· Pulmonary Hypertension Association

· Spina Bifida and Hydrocephalus Bulgaria

· Support Group of Aniridia Patients

· Support Group of Parents of Children with Williams Disease

· Bulgarian Huntington Association

· Support Group for Porphyria

· Turner Syndrome Bulgaria

· Bulgarian Moshkowitz Syndrome Association (TTP)